Details

Written by Joanne Wallenstein

Published: 20 March 2025

Created: 20 March 2025

Last Updated: 20 March 2025

Hits: 3328

In April 2024, the Scarsdale community was rocked by the sudden passing of a beloved Quaker Ridge 5th grade student Mark Shaparin. A kind, loving, and thoughtful ten year old with a true appreciation for life, Mark was adored by his family, friends, teachers and all who had the pleasure of knowing him.

Though Mark was an otherwise healthy and adventurous young boy, on April 5, 2024, he had his first known seizure and his parents Naum and Joanne rushed him to a local emergency room. During this visit all tests were normal, and the family was told to see a neurologist. Two days after his first seizure, Mark was seen by a pediatric epilepsy specialist and was diagnosed with Benign Rolandic Epilepsy (BRE) also known as Self-Limited Epilepsy with Centrotemporal Spikes (SLECTS). The family learned that BRE is a common night-time childhood seizure disorder that usually resolves on its own during the mid teenage years.

While Mark was scheduled to undergo additional testing, medications were not recommended and the family was told to take their upcoming vacation and to proceed with life as normal. Mark was given an excellent prognosis, which was consistent with internet searches of his diagnosis on reputable websites. His parents, both medical professionals, were not aware or made aware of Sudden Unexpected Death in Epilepsy (SUDEP).

Less than two weeks after his diagnosis, Mark suffered his second known seizure and tragically passed away in his sleep. It was only after his passing that Mark’s parents first learned about SUDEP. Devastated by what they feel was a preventable death, Naum and Joanne became determined to create more awareness about SUDEP and started The Mark Shaprin Foundation in their cherished son’s name.

According to their website, the foundation’s mission is:

“The Mark Shaparin Foundation leads educational initiatives for healthcare providers and families across the country to increase knowledge about Sudden Unexpected Death in Epilepsy (SUDEP). Their focus is on raising awareness about risk factors and preventative measures and creating a robust national dialogue about SUDEP in and out of the medical community. Through these initiatives, the goal of the foundation is to reduce the incidence of these devastating deaths — currently at approximately 1 in 1,000.

SUDEP is not routinely taught in medical school or other medical training programs, making it especially dangerous. For medical providers with knowledge of SUDEP, many do not discuss it with their patients for fear of alarming them and their families. The Mark Shaparin Foundation’s focus on educating providers, patients, and the public about SUDEP distinguishes it as an essential nonprofit organization in the epilepsy and seizure disorder community.

Through educational initiatives, events, and fundraisers, The Mark Shaparin Foundation commemorates Mark’s extraordinary life and passions. At the heart of every program organized by the foundation are the love and joy that Mark brought to his family and everyone he knew.”

Joanne and Naum especially want parents and medical professionals to be aware that while SUDEP is rare, it can happen to anyone who experiences seizures, even febrile seizures. They also suggest steps to minimize the risk of SUDEP such as using a seizure motion detection monitor and a physiological monitor like an apple watch to monitor heart rate. They also suggest that family members become certified in CPR and keep a tank of oxygen in their homes.

Aside from creating awareness through efforts like attending medical conferences and speaking directly with healthcare providers of all specialties including physicians, physician assistants, nurse practitioners, nurses, paramedics, and emergency medical technicians, Naum and Joanne have taken steps such as reaching out to medical schools to conduct lectures to medical students and advocating to have information about SUDEP included in the curriculum and textbooks.

For their first social media challenge The Mark Shaparin Foundation is holding an “Escargot Challenge.” The Foundation’s website describes this challenge by saying:

“Our first official social media challenge launched on Wednesday, February 26th! In honor of Mark’s adventurous palette, we’ve decided to raise awareness about Sudden Unexpected Death in Epilepsy (SUDEP) by challenging our supporters, followers, and anyone on the Internet to eat escargot. Why escargot? Mark loved trying new foods and couldn’t wait to try escargot for the first time at The Hollywood Brown Derby in Disney World's Hollywood Studios at 8 years old.

Join The Mark Shaparin Foundation for our Escargot Challenge culminating event on Saturday, March 22 from 3-7 pm at Wayside Cottage in Scarsdale. Our live event will support our social media challenge, which has raised awareness about epilepsy and Sudden Death in Epilepsy (SUDEP) throughout the month of March.

We'll have escargot available at our event for anyone who would like to partake in the challenge as well as gummy and chocolate snails for our supporters that want to participate but are unable to eat a “real” snail.”

Click here to register:

Though Joanne and Naum have experienced the most unimaginable pain, they have somehow managed to persevere through their heartache to create a foundation of hope that honors their son Mark. They recognize they could never have forged ahead on their own and express immense gratitude for the Scarsdale community who came together to support them in their time of need. From meal trains to words of encouragement, Joanne and Naum are forever grateful for the tremendous outpouring of love and support.

To learn more about Mark and his story, see here.  

Details

Written by Wendy MacMillan

Published: 03 April 2025

Created: 03 April 2025

Last Updated: 03 April 2025

Hits: 929

Sonja Xie, a bright, curious, and passionate student at Scarsdale High School, recently took 4th place in the category of Medicine and Health Sciences at this year’s Regeneron Westchester Science & Engineering Fair. When she isn’t winning prestigious awards, Xie is using her research and knowledge to actively make her community (and the world) a better place. The aspiring physician is the founder and CEO of Brain Waves for Change, a youth-led organization committed to providing accessible and engaging neuroscience education to younger generations. According to their website, “Brain Waves for Change (BWC) strives to raise awareness for neurological emergencies and reduce stigmatization surrounding neurological illnesses.Through arts and crafts, graphic illustrations, and interactive learning, we break down complex topics into simple, engaging content. We lead hands-on lessons in schools, distribute infographics online and locally, and foster the creation of neuroscience-related art.”

Inspired by her hard work and determination, we recently reached out to Xie to learn more about Brain Waves for Change and why the organization is so important to her.

When did you start Brain Waves for Change?

I’ve been interested in creating a community-based initiative related to neuroscience and education for a few years now. After some planning and logistics, Brain Waves for Change (BWC) was officially established Fall of 2024.

What inspired you to start the organization?

The World Health Organization reports that nearly 1 in 3 are affected by neurological conditions, making them the leading cause of disability worldwide. These illnesses strip individuals of their autonomy, divide families, and leave a world forever changed by chronic suffering.

As I deepened my knowledge of neuroscience through research and community service over the past two years, I witnessed firsthand the devastating impacts of neurological illness, but also recognized the overwhelming stigma surrounding neurological and mental health. This silence creates communities where voices are unheard and individuals feel misunderstood— and Scarsdale was no exception. Youth, adults, and elders alike are left in the dark, with no resources to turn to or safe spaces to have open conversations about their struggles.

I began Brain Waves for Change (BWC) to change this reality, starting in Westchester, NY. Education is the foundation of change: a tool to empower, inform, and drive meaningful action. BWC was born from my passion for art, neuroscience, and community outreach. I wanted to merge these three interests to create an educational space where community members have the opportunity to engage with brain health creatively, allowing them to learn life-saving information, recognize early signs of neurological conditions, and speak out about their experiences without fear.

Why is this topic important to you?

Brain health is deeply personal to me. I’ve witnessed neurological disability sever connections and create tensions within my family, and I’ve felt the burden of mental health issues since the pandemic. Yet whether you struggle with self-doubt or experience something as mild as a headache, neurological health is something that affects us all.

One of Brain Waves for Change’s focuses is to promote open conversation about mental health. This aim stems from an issue that I believe resonates with a large portion of students at Scarsdale High School, and that is, academic stress. The pressure to attain perfect grades and excel constantly can often feel overwhelming, taking a toll on both mental and physical well-being.

Even more, I believe that one of the most concerning aspects of this issue is the way neurological illness is stigmatized online and in the media, particularly among teenagers, which only perpetuates misinformation and fear. Brain Waves for Change is determined to shift the conversation, from one of stigma and intimidation to one of support, understanding, and action.

How do you hope your organization can effect change?

Brain Waves for Change is committed to creating a future where neurological health is prioritized, starting by dismantling the stigmatization of neurological illness, inspiring conversation about brain health, and teaching early-intervention and emergency response skills. Our three service programs host arts and craft workshops for children, deliver educational presentations at community centers, and leading large-scale fundraising campaigns.

In connection with local libraries, hospitals, and nonprofit organizations including the National Alliance on Mental Illness (NAMI) and the Alzheimer's Association, we target a diverse audience to enact real, lasting change. We currently have 20+ members located internationally, with students located in countries including Canada, India, and Bangladesh. Together, we can empower individuals, create supportive communities, and foster a global network of brain health advocates.

Have there been any especially rewarding moments or highlights for you?

We’re beyond grateful for the positive feedback we’ve received thus far, from organization leaders, from parents, and from curious and laughter-filled children themselves. Through partnerships and participation in health fairs, it’s been truly rewarding to see the united effort in our community to improve brain health education and care. And through our 2025 Brain Awareness Week campaign, we’ve already seen a spark of curiosity in children who are now more interested in brain science. It’s moments like these that truly remind us of the impact we’re making.

How can others get involved?

We have a multitude of opportunities for youth located both locally and internationally. One of our positions accepting applications on a rolling basis is our BWC Researcher role, which includes participating in ongoing research projects while collaborating with a global network of youth. We’re always looking for creative and innovative ways to partner with other health organizations, advocacy groups, or community initiatives, those interested can visit our Partner With Us page on our website for more information. Others can get involved by simply engaging with our social media or leading meaningful conversations to spread awareness for brain health.

We’re currently leading a fundraising campaign for NAMIWalks Westchester, the region’s largest annual mental health event on May 17, 2025. We encourage you to visit our team page (https://www.namiwalks.org/team/72812) and support us with a donation. We invite you to make a difference— for yourself, for your mental health, and for the countless others who need support.

Readers can learn more about our work on our website (https://www.brainwavesforchange.org) and our instagram @brainwavesforchange. For volunteer, partnership, or other inquiries, please contact [email protected].

Details

Written by Joanne Wallenstein

Published: 03 March 2025

Created: 03 March 2025

Last Updated: 05 March 2025

Hits: 752

Thirty-year Scarsdale resident Andrew Sereysky has been tapped as the 2025 recipient of the Scarsdale Bowl. He will be honored at a celebration of volunteerism at the Mamaroneck Beach and Yacht Club on Thursday April 23, 2025 at 6:30 pm and you’re invited. Click here to purchase your tickets:

Here’s what Andrew has to say about how he became one of Scarsdale’s most active volunteers:

How did you get the volunteer spirit? From family or other mentors?

We moved from the Upper West Side of Manhattan in June 1994. Like many other Scarsdale residents, commuting on the Metro North quickly became part my daily routine. We commuted from the Hartsdale train station. One morning after only a couple of months in Scarsdale I began talking to a fellow commuter, Bob Steves and the topic of volunteerism came up. At that time Bob was the president of the Greenacres Neighborhood Association. To quote a famous movie line, “he had me at hello.” I’ve never looked back since that chance meeting and the beginning of my volunteerism.

What were some of your earliest volunteer experiences in Scarsdale?

With a son in fifth grade and daughter in first grade, both athletically inclined our lives were quickly consumed by rec sports for the fall winter and spring seasons. Soon I was coaching! This was a terrific opportunity to meet fellow Greenacres residents and as the children got older to meet other neighborhood parents. A terrific chance to make life-long friends in the community.

Tell us about your tenure as President of the Greenacres Neighborhood Association. What were some of the traditions that you began?

When I was first elected President of the GNA back in 2007 I was very fortunate to inherit a vibrant and successful organization. We had and continue to have a terrific and fun board of around 20 people with everyone looking forward to our board meetings as social gatherings. Since the early days and throughout my second extended term (2013-2023) we developed and implement a number of new and exciting programs for Greenacres residents including the addition of the firetruck spray during our July 4th celebration, a fall pancake breakfast, a spring town hall meeting with the key Scarsdale leaders on a panel discussing upcoming events and answering our neighbors’ questions and complaints and of course our outdoor movie night. I’m thrilled to report that all these innovative programs continue today.

What were some of the toughest times for the association and some of the best times?

The toughest time was during to GA elementary debate as to whether the school was to be renovated of rebuilt. Both factions were coming at the GNA for our support and as an organization we pledged not to take a side but merely act as a conduit of information for our residents.

The best times were time spent with my fellow board members and especially passing the presidency to Kristen Cipriano whose capable leadership will insure the GNA continues to thrive and grow over the years.

How were you able to get the next generation of residents involved in the neighborhood association?

The key to getting the next generation of resident involved in the GNA fall squarely on our younger board members and volunteers. While a few times each year we have outbound resident acquisition effort our younger board members have direct contact with new residents and fellow elementary parents and are able to bring them into the board.

Tell us about the Cable Television Commission and your efforts on that board.

Most Scarsdale residents are probably not even aware that we have a Cable Television Commission. It was through the efforts of the Commission around 10 years ago that we were able to introduce Verizon Fios to the community and thus give residents an alternative cable service to Cablevision (now Optimum). As part of that agreement, we secured significant funds for the village that we channeled to the new library. The commission is currently gearing up to begin franchise renewal re-negotiations with both Verizon and Optimum.

Does Scarsdale need a Dog Park? Tell us what you think.

Every dog has its day - except in Scarsdale!

For over 8 years I’ve been petitioning for a dog park in Scarsdale. We’ve met with various village departments, village groups and individual dog owners. Just looking out of our windows and driving around Scarsdale one can tell our dog population has grown significantly. A dog park would provide not only an exercise area for our pets but more importantly a key opportunity for residents to gather and socialize. The issue is, where to put the dog park. I know the village is in favor of a dog park and is actively looking into this. My hope is that a solution will be found.

Why do you like Scarsdale and what makes it special to you?

Scarsdale has been my home for 30 years, and what makes it truly special is the deep sense of community that defines it. It’s a place where neighbors support one another, where friendships last a lifetime, and where people genuinely care about making a difference. The commitment to education, volunteerism, and civic engagement is unparalleled.

For those who are not familiar with the Scarsdale Bowl Dinner, why would you encourage them to attend?

The Scarsdale Bowl Awards Dinner is more than just an event—it’s a celebration of the values that make our community so special. Attending the dinner allows us to come together as neighbors, reconnect with friends, and be inspired by the incredible work being done across our town. It’s also a wonderful way to support and encourage the next generation of volunteers and leaders.